While scrolling through Instagram, Laura had come across a post by Chloe who was raising awareness for Ehlers-Danlos syndrome (EDS) and the challenges of living with EDS to her 11+ thousand followers. Laura could not believe she had found someone with the same condition as her and because of constipation caused by slow transit in the bowel and a rectocele, also uses the same medical device to allow her to go to the toilet.
Quickly bonding over shared symptoms and experiences, and their Qufora product for bowel irrigation, they developed a supportive relationship. Eventually, they called themselves the Qufora Twins because they never imagined there was someone else who is just like them.
Living with a rare and hidden chronic illness, like Ehlers-Danlos syndrome (EDS), is extremely difficult. Finding someone who can understand exactly each thing you are going through can feel impossible, especially when one of the symptoms is a common taboo – bowel problems. In those with slow transit constipation (sometimes searched as ‘bowel slow transit’), the time taken for stool to pass through the colon is decreased and bowel movements are less frequent, leading to symptoms like straining and harder stools. Other symptoms of constipation caused by slow transit in the bowel include feeling like there is a blockage in the rectum that prevents bowel movements and feeling that stool cannot be completely emptied from the rectum.
Their positivity and openness about bowel dysfunction is admirable and their story shows how talking about bowels can be a natural and even light-hearted conversation. Their open and supportive relationship is their take on breaking down the taboo. Having the symptoms of constipation caused by slow transit in the bowel is their normal, and asking each other “how are your bowels today?” is just like asking someone “how are you today?”.